I'm a mom, it's what I do. Born and raised in Iowa small town style. Have a BA in Human Services emphasis in family and child welfare, I have some background in the health field, education (FAFSA), and approximately 12 years advocating in the realm of all things special needs related. I'm not a shy person infact the opposite as I am very outspoken extremely passionate in my beliefs and what I value. My mother always used to say I'm either super easy to love or not at all loveable, there's no middle ground.( I.E. stubborn and difficult but hard not to love)
About My Family:
My family is quite the collection of awesomeness. I have 5 children of which 4 are special needs each of which are completely unrelated to the other. My first born Ethan would be 14 born with trisomy 21 and a av canal heart problem all of which went unnoticed during pregnancy, sadly he passed away at age one shortly after discovering he had leukemia. I was lost until Emily is 11 yrs old, she was born everything typical until aged 2 mo she had a seizure for no known reason, they've never really stopped since then and no cause has been found. She's been through a lot to try and stop them. She is diagnosed with medically intractable refractory epilepsy with convulsive seizures, they occure daily even after the VNS and full corpus callostomy brain surgery. She is nonverbal, wheelchair dependent, has severe intellectual disability and developmental delay, her personality is funny she's sassy in her way. She is instantly loved by all and can win over a room no problem. Next is Isabella age 8 she came a tad bit early but that's matches her unique dramatic style. She had delayed developement and didn't speak a single word until almost 4 years old. She recently was diagnosed with ADHD combined with ODD she has significant behavior issues. Otherwise very typical kid Minecraft and YouTube videos are her life as she says. She likes to be the center of attention and usually is. Very good sister and protector of Emily. Finally we have "the babies" the youngest 2 came after a 6 year gap my son Oliver age 2 and daughter Abigail age 1 it's quite the difference having them so close together. They have very different dispositions so far but are both onary as can be. Oliver has some sort of disability but what we don't know yet recently started IFSP services. Big time Mama's boy loves any kind of vehicle or anything with wheels, loves climbing, and cancel name most construction type machines like back hoe and excavator. Abigail also a big Mama's girl she has been the easiest baby just started getting fiesty and about to walk any day now. Which leads us to our last but not least child Trenton we have him 4of7 days and afterschool he is also 11 and fun fact was an only child when we all came together. He's the quite type til you get to know him is into something new everyother week it seems. Good brother loving and very helpful. Finally we have Dusty otherwise called Daddy he's quite the guy works in the parts industry he has a unique personality big hearted kinda guy.
So that's us one big blended family. We have a lot of challenges but also love, I'm lucky to have them all in my life and proud to be their mother.
I'm here because...
I would like to build a support network, meet people who know what it's like to have loved ones with special needs, learn gain insight knowledge possibly make some new friends while we navigate life